Half Way There! - Remodulin Subq Update
🎶 Cue Livin’ on a Prayer because… we’re halfway there! 🎶
For almost seven years, my Remodulin pump was running at 48 μL/hour. Now my rate is down to 24!
Since starting Winrevair (sotatercept) in December, my PH team and I have been gradually decreasing my Remodulin rate to help manage side effects as the two medications work together. Meanwhile, my latest echo showed my pulmonary pressures have decreased by nearly half, and I’m feeling better than I could have imagined.
I’ve shared a few of my goals since starting Winrevair and I’ve already been able to check two off the list! If you haven’t seen them check them out:
Coming off subq entirely is still at the top of my wish list (whether that will ever be possible remains to be seen!), but being able to lower my rate while my numbers continue to improve is pretty exciting. And who knows? Maybe a few more goals will be crossed off along the way.
After so many years on the same treatment regimen, it’s amazing to see how much has changed in less than a year. There’s still a lot of unknowns, but for now, I think Bon Jovi is the perfect soundtrack for this milestone! 💜
Comments